Christine

Opportunities and Biostatistics

In June I entered a program called New Wave at the University of New South Wales focused on entrepreneurship (for graduates and students). I learnt much and also had the opportunity to pitch the Alianza for funding. It was great opportunity to practice public speaking and although the video has not been made public, is the link, exclusively for my blog followers. I’d like to do a TED talk one day so I still have much to learn but practice is crucial step towards improvement.

4+ minute speech plus question time – (it goes on to other speeches)

I’m getting more opportunities to speak at different events and have 6 workshops/small talks booked over the next 3 months. I have been invited to give a workshop in the PDM Alliance conference in October in DC (USA) and I will also make a quick trip to Peru  at the same time.

But for now I have about 3 weeks left in biostatistics and a big assignment to conquer before I can say I finished my masters subjects and can focus on my research and preparing for my talks and trip. 

Quit Swimming

Yesterday I quit swimming. I have been doing classes since December and I got the backstroke and I have been improving my freestyle form. But the last few weeks I was getting more and more frustrated. I’m feeling I am putting too much pressure on myself and my skills are getting worse rather than better.

I knew how to ‘swim’ before the classes but they have been teaching me the right way to do it. I have progressed a lot but it turns out I am missing one item on the checklist to move to intermediate level – that is swim 25 metres. Why? I don’t get enough breath so I only get about half way along the 25 m pool before I have to stop. I know what I am doing wrong but trying and trying isn’t fixing it. It is just getting me upset. Sometimes little hacks help like “chin on your chest” but I still can’t do it all together yet.

I am going to swim on my own when the kids have lessons instead. Also I have decided to try just breathing on one side and see if that helps as I believe I could do that.

Quitting gives me time to do what I want to do. Today I joined a PD class and met some enthusiastic Parkies who I think would be great chaps to build a community with – It is terrible to be alone. I also need more time to do gymnastics and now I’m going to make this a bigger priority. I miss my gym in Peru but I’m sure with time I’ll figure out the plan and in the interim ‘Just keep moving!’

Have you ever had to quit something to get over a blockage or to find time for your true love?

Michael J Fox Research Project

This is a project announcement close to my own heart. See the link below.

Yes that is right it is about Parkinson’s Disease in South America, and specifically the Alianza Iberoamericana which I co-founded will be organising a stakeholder engagement. I will be a researcher on this project, which is is just in the planning staged right now. It is a huge undertaking and I am getting guidance from the proposal team and my university in Australia.

It has been a big team of people who put the application together and a big team of people who worked to get the Alianza Iberoamericana de Parkinson’s started.

I would love to take it further and have greater opportunities to help the Parkinson’s Community. Pray for a clear path. trustworthy partners and the right opportunities.

https://www.michaeljfox.org/grant/studying-epidemiology-parkinsons-disease-latin-america-learning-underrepresented-populations

Documentary

How do you get people’s attention and keep it?

I’m working on a documentary about Parkinson’s Disease with a professional filmmaker. Right now I am working on the opening script… a daunting task as it has to capture people’s attention and draw them in.

I need a script writer really, someone with an independent eye as I am too involved in the film to have perspective on it. I look forward to sharing with your the video next year and I am looking for marketing support as well to get it into the public spotlight and hopefully get some mainstream media attention when it is ready to release.

I have been extremally busy over the last 3 months and have not had time to post much but we all have these times in life and I look forward to returning to writing soon but need a few more months to get settled and catch up on a few projects, plus work and family responsibilities.

Thanks-you for reading my blog.

Enjoying God’s painting of the sky

Your film has 44 wonderful comments

My Film” Would you sell your house to save your mother” was recently in a video competition called “focus on ability”. Unfortunately the website could only hold 10 comments at a time so I couldn’t see all the comments and I asked Ryan from Focus on Ability if there was a way I could see them all. He wrote “Your film has 44 wonderful comments”. I was shocked, that it had so many and most were from people I didn’t even know.

Thank-you everyone for voting and for sharing and for the amazing comments on the video. I do not believe it won the popular vote but you never know and on the 27th October about 7pm Australian time it will be announced in a ceremony on facebook of “Focus on Ability”. It is up for a judges award as an International Documentary.

Win or loose it has been a valuable experience for me in editing the video and managing the whole process of the competition. The video has been seen by over a 1000 people more than saw it previously and many have been challenged, realised how blessed they are and learnt something about Parkinson’s they didn’t know. I have also connected with many people who helped me share it yet again. 

It also encouraged me to start another video project but this time with a young professional. I don’t want to give too much away but I think it is going to to be a powerful short documentary and our aim is to get it into a mainstream film festival. 

Of course I’m now learning you need funding to promote your film and bring it to the attention of the public but since we’ve stepped out in faith and filmed the project we’re going to keep going and have faith that the funding to promote it will come in once we have the final product, it should sell itself. 

I don’t want to give too much away just yet but watch this space. 

Thanks again for your support and interest. 

Christine J.

44 Comments from around the World

Beautiful and heart touching video. Creates a lot of awareness on the disease.. God bless the family.Marsden Park Australia
What an inspiring and educational short film CongratulationsSanta Monica United States
Very touchingSutherland Australia
super videowesley hills United States
Amor sensibilidad empatia y compromiso necesarios para afrontar esta condicion y hacer de esta vida un mejor mundoPereira Colombia
Tried to write something but have no words to describe mother .Liverpool Australia
This portrays humanity and love that is genuine.Bamenda Cameroon
Excellent work by Christine in raising awareness about this disease and the challenges the patient and their families face.Westleigh Australia
Christina honoured her mother by following and keeping one of the ten commandments.Kolkata India
Inspiring and Impactful Love is a verb.Sydney Australia
Well done ChristineCaterham United Kingdom
Excellent work of her daughter. She shows compassion and love for her mother. Credit goes to the mother herself while rearing her. She has learnt from her mother herself. It's a rare exampleDelhi India
Es una gran realidad no hay cura para el Parkinson yo tambin lo sufro pero el amor todo lo puede est gran familia merece ganar con ste vdeo.Voten e inviten a ms personas que lo vean y voten por el. El parkinson no nos definesin embargo es una enfermedad muy difcil de sobrellevar tanto el paciente como la familia se van consumiendo con la enfermedad.Escobedo Mexico
Excellent story and awareness of this decease. Amazing family and the way they took care of their mother
Berwick Australia
JuampyJuampys
Christina did a wonderful thing I wish she become a roll model for many. Many do not care for their aged parents even though they have plenty of wealth. May the Lord bless ChristinaPathanamthitta Kerala India
Very touching. Indeed true love can do anything.Thane-Mumbai India
Muy conmovedora historia y lo ms importante lucharon por su madre la f mueve montaas un ejemplo a seguir bendicionesTALARA Peru
Excellent very touchingChennai India
Truth well told…Bengaluru India
Thank you for helping raise awareness for this unrelenting disease. We all need to speak up to raise awareness so we can end PD nowCalifornia United States
PIURAPiura Peru
A heartwarming story will told. May the angels of God protect us all from evil.Oatley Australia
Inspirational story about a family willing to sacrifice their home to help their mother with Parkinson's.Penshurst Australia
Piura
Piura
An extremely moving film. What a wonderful sacrifice this family has made for their mother.Caterham United Kingdom
It is an amazing story well doneCarlingford Australia
Amazing story Thank you for sharing and creating the video to raise awareness on debilitating Parkinsons disease and its impact on function family and finance. Thank you Pray that there will be a breakthrough in finding cure for this disease.Homebush Australia
Very natural without exaggeration down to earth informative filmBangalore KarnatakaIndia Australia
Very moving Hope we find a cure for Parkinson soon. Instead of spending trillions of dollars on war machinery we should work on finding cure for Parkinson AIDS Cancer etc.
Warminster United States
Rosita is not like many people of this world but allowing God to change the way she thinks. She knows how to do everything that is good and pleasing to God.Romans 122 CEV. In serving her mother's needs she realizes the value of mothers. Parkinson's is debilitating and without medical intervention life is severely restricted and causes an intense emotional with a mental impact that isolates the person. Thanks for highlighting the need in some little published countries.
Cromer Australia
A true story of love compassion and sacrifice an example to emulate of Honouring your father and mother a story that will inspire many to pray for and support those suffering from Parkinsons disease.Caterham United Kingdom
Very enlightening thank you.2207 Australia
Well done a brave step to save the mother and I support this because as scriptures says nothing is greater then LOVE… It is God's love that saved us from the bondage of sins and saitan…All Praise and Glory to God for giving some comfort for this sister…
Little Andaman India

The world needs to see this powerful story. Wish this film will get recognized and that many more will benefit from this very open and honest effort.
Bangalore India
A close knit family's to put the Mother above all their personal need which is selling their prized possession 'The House' is very touching and moving. Very appealing film.
Bangalore India
Truly touched.
Sydney Australia
Thankyou everyone for your votes. I know I have to a wonderful community supporting me. My friends like Ana Mara Sabela Lizzie Esme Larry. David and my kids too have put in hours of help checking and rechecking. It takes a community to make a documentary. And thanks to the family for inspiring so many. I have a longer version of their story at Christine Jeya on YouTube. We hope this video shows the need for a cure and better treatment for all.Arequipa Peru
Inspirational.Concord Australia
Wonderful Christine So good
Caterham United Kingdom
A video which depicts reality of life.It was a very moving video about the effect of the disease. More so about the sacrifice of the family to give the life back to the mother who gave them life in the first place and made so many sacrifices to bring them up.The video is about celebration of life rather than gloomy helpless one It is about victory over one of the most debilitating diseases in life.Penshurst Australia
Well done. If the problem can be solved by money its not a problem its the costs. – Jewish proverb. I would do the same.
Old lyme United States
Ta Doris t vas a ganar
Piura Peru
Muy lindo y espero que esto llegue a muchas personas para que sepan su historia
Piura Peru

Vote for my video as Popular Winner

Please vote for my international video in Focus on Ability Film Festival. For viewing and voting is on

https://www.focusonability.com.au/FOA/films/2297.html

UNTIL: August 16 midnight Sydney, Australia time (10am Tuesday 16th AUGUST New York Time)

Find my name: Christine Jeyachandran and Video – Would you sell your house to save your mother?

Under your film will be a vote now button. Click on the button and enter their details.

All votes must be verified to count. That means everyone who votes will be sent an email with a verification link, they then simply verify via that link. This means people cannot cheat and put in fake email addresses. We also have a manual verification system, so if your voters aren’t receiving the verification email don’t stress (spam folders etc) their vote will still count, we can identify the real email addresses. To incentivise voting, we are giving away $50iTunes vouchers to random voters.

Vote and ask others to vote too for the video.

Many years the difference between winning and 2nd has been under 5 votes so every vote certainly counts.

People can only vote once.

ESPANOL:

Por favor, vote por mi vídeo internacional en el Festival de Cine Focus on Ability. Se podrá ver y votar a través de www.focusonability.com.au

Cuando Abre: el martes a las 10 de la mañana, hora de Sydney, Australia (7pm el lunes 9 Agosto en ahora Peru)

Teminara: 16 de agosto a medianoche, hora de Sydney, Australia (9am, martes 16 Agosto en Peru).

Muchos años la diferencia entre el ganador y el segundo lugar ha sido de menos de 5 votos, así que cada voto ciertamente cuenta.

Sólo se puede votar una vez. Creo todo sera en Ingles por eso vez mi nombre y video – el video es en espanol con subtitulos en Ingles.

Busca mi nombre: Christine Jeyachandran y “Would you sell your house to save your mother”

Debajo de su película habrá un botón para votar ahora.

Haga clic en el botón e introduzca sus datos. Todos los votos deben ser verificados para que cuenten. Eso significa que todos los que voten recibirán un correo electrónico con un enlace de verificación, y entonces sólo tendrán que verificarlo a través de ese enlace. Esto significa que la gente no puede hacer trampas y poner direcciones de correo electrónico falsas. También tenemos un sistema de verificación manual, así que si tus votantes no reciben el correo electrónico de verificación no te preocupes (carpetas de spam, etc.) su voto seguirá contando, podemos identificar las direcciones de correo electrónico reales. Para incentivar el voto, regalamos vales de 50 dólares de iTunes a votantes aleatorios.

Vota y haz que todos tus conocidos voten por el vídeo.

COVID for Christine

“I have cancelled our friends coming for dinner” I said. “No mummy! she implored me to “UNCANCEL” as only a 13 year old can. But within a few hours we were both snoozing in our beds, me with belly pains and body aches and she with the tiredness of a 2 year old. That is not normal for my Annabelle. 

It was the right choice as it turned out. It was COVID. 

My Monday Annabelle and I tested positive to COVID and over the next 10 days I had flu symptoms, slight fever, headaches, both intense and normal, tiredness, sleeplessness and other days of excessive sleep. The other two kids had brief symptoms but we never got them tested and the kids were back to normal within a day or two. 

By my 5th day, David had joined me in the covid sleepiness. 

It is day 11 and though I’m not 100% yet I feel like it is time to seize the day and pray this is the turning point. David seems to be more awake today too and though blowing his nose loudly – he seems on the mend too. 

We’ve had friends delivering food – we still have left overs and so many messages of love and support. We’ve been so blessed to experience a light version of COVID – well that is my guess – no hospitalisation, no oxygen needed. 

Please pray I recover quickly so I can get back to my exercise and vibrant self. I know we need to be patient.

Rise21 Finalist – Alianza Iberoamericana de Parkinson

Alianza Iberoamericana de Parkinson is an exciting initiative that needs support! I’m looking to generate revenue to get this life-impacting initiative off the ground. My project has been short-listed in RISE21 a competition for social enterprises that help reach the UN development goals. 

Without timely treatment, Parkinson’s Disease disables many. The Alliance of Parkinson’s aims to increase the quantity, quality and accessibility of resources and training available to health professionals and patients and their families, to improve services and the quality of lives of people with Parkinson’s throughout the Spanish speaking world.
See this video for more information. Please contact me by comments if you’d like to know more or can help fund or find funding for this Project:

Please watch the video at this LINK: https://lnkd.in/dMt3Jds

Special thanks to Ludovic Kohn for the drone footage – check out his channel here for other amazing footage. Amazing! More of his videos on his youtube channel:

https://www.youtube.com/channel/UCbCDhE-V0Id4d9YlIiiEQrg


 #health #parkinson #rise21 Ignacio Mata

Would you sell your house to save you mother?

3 April 2021: This family decided to sell the house they live in, to operate on their mother. What would cause a family to take such a drastic measure? Parkinson’s Disease! After 10 years of Parkinson’s Disease Dorys could not control her body. She trembled violently. Without graphic footage this story brings the reality and ugliness of Parkinson’s Disease and its effect on one family. It is an amazing story of suffering, sacrifice and love. 

The month of April is Parkinson’s disease awareness month. Parkinson’s Disease is a chronic progressive neurodegenerative movement disorder and is one of the Neurological disorders which are the leading causes of disability globally (GBD Parkinson’s Collaborators 2016), Parkinson’s disease, discovered more than 200 years ago, is the fastest growing neurological disease in the world. There is still no cure. We urgently need a cure for this disease and better treatment for people like Dorys. 

This story aims to demonstrate the reality of the disease for people who live in lower and middle income countries and the west too in some cases. The story is from Peru and is made by Christine Jeyachandran, amatuer youtuber.  Christine, an Australian, was diagnosed with young onset Parkinson’s disease diagnosis at the age of 37 and lives in Peru. The deficit of services for Peruvians breaks her heart.  She writes “Well, within minutes I was blown away by the family’s story. Despite not having my camera with me, I returned early from the beach to film the full story”

Christine started an association to help educate her community about Parkinson’s disease but she has contact with people all around Peru with the disease.

Please don’t let Dorys story be invisible. Her life and the life of her family matter and we need to let others know just how this. We need to END PARKINSON’S! 

Christine Jeyachandran – Parkinson’s World Congress Ambassador 2022 & Founder of Activate Liga Contra el Parkinson (Peru)

Please use these hashtags on social media:

#SellHouseSaveMother, #ParkinsonsDisease, #ParkinsonPeru, #NoMoreSuffering

The video is also available on youtube fully in Spanish.