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WORLD PARKINSON’S CONGRESS

Fundraising Target reached! THANK-YOU

Thank-you for your donations for the World Parkinson Congress travel grants fundraiser: WPC for YOPD.

We have over $2500 in donations with a few donations sent directly to us, so hence the estimation as we have yet to send through the latter and with exchanges rates we will confirm later.

The grants are international but in the thank-you video attached we specifically mention helping Peruvians as they will be a priority for the funds I raised.

The 10 day challenge was fun and helped me keep exercising even though we were packing house and moving house.

Day 1: Ab workout

Day 2: Skipping and ribbon Dancing

Day 3: Gymnastics

Day 4: Bars at the Park

Day 5: Head standing and stretching

Day 6: Gymnastics (kip on floor video)

Day 7: Yoga and stretching

Day 8: Moving house – Packing and lifting boxes and suitcases. It was certainly draining even though not traditional exercise.

Day 9: Walking – Walked to the city and back plus suitcase walking in the afternoon.

Day 10: Cycling (indoors and out).

Thank-you again everyone for your support. Blessings

This is a short thank-you from the kids and I.

https://photos.app.goo.gl/SQn71WdMx1EAuowp8

I’m going to climb a mountain – Fundraiser…or plan B?

Well I had big plans for this fundraiser: I was going to climb a mountain but COVID19 means that after 6 months we’re still on lockdown in Peru. We are only supposed to go out for shopping. So no mountain climbing. So plan B….. but first what am I fundrasing for.

Going to World Parkisnon Congress last year CHANGED MY LIFE!

I have made a short video about it on facebook:
https://www.facebook.com/591502886/videos/10157825732897887/?extid=Zl9ANwhhjbO7NBGQ

It empowered me to reach out to help the Parkinson’s community in Peru. I’ve started a Parkinson’s association in my city and I’m educating my community about Parkinson’s, drawing on what I learned the World Parkinson’s Congress. I’d like to see others with Parkisnon’s to also be empowered to help their community here in South America and beyond. I’d probably not be doing what I am doing without the inspiring experience of being a part of the World Parkinson’s Congress. 

As you can imagine getting to go to such an international event is expensive, so we are raising funds travel grants to subsidize those in need. The congress is in June 2022 and this time it is unique because it will be in Barcelona in Spain. This is super exciting for Latino’s because it means that it will be translated or presented in Spanish as well as English.  This means it is the perfect opportunity to get Peruvians and other Spanish speakers along and empowered to come back and lead their communities. 

Please donate to the link:

https://www.worldpdcoalition.org/donations/donate.asp?id=19358

My aim is to raise $2,000 before my birthday on the 28th August

Thank-you in advance for your generosity. Every little bit counts.

No mountain climbing so what am I doing? What is plan B?

A 10-day physical challenge. I will be exercising everyday sharing a video daily via facebook. I’m a little behind in posting as I had a problem I’m trying to sort out with facebook. My next blog will explain the glitch but I’ll post the first video today.

Christine Jeyachandran

Ambassador of the World Parkinson 2022

Facebook has blocked me from using their fundraiser

I am having a fundraising for my birthday (28th of August) which is usally done through facebook fundraising but they won’t allow me to use their system because I live in Peru.

I wrote to Mark Zuckerberg an email similar to this:

I signed up in January to raise funds WPC for YOPD. The money goes directly to the World Parkisnon Congress (not to me) though it must be set up from my personal facebook account.

IT SEEMS STRANGE that I am not allowed to raise funds with facebook fundraising for my favourite charity? I went to the WPC facebook page and I can’t even donate? This fundraiser is for my birthday on August 28th. I’ll be 44.

If it was money just for a personal cause I’d understand but this fundraiser is part of a legitimate charity and you can find my profile has been on the website since January. https://wpc2022.org/page/wpc4yopd

I don’t get any money from the fundraising. I just want to help others get along as the World Parkinson’s Congress changed my life for the better.

I made a video about my story of combating parkinson’s by using gymnastics – it was one of the 12 finalists for the video competition. I have kept going ever since and now reach out to my community to help others by running classes and setting up an association.

I am already going to the WPC so this is to raise funds for others – especially my friends who can’t afford to go but I know they would benefit a lot. 

I hope Mark can resolve this.

Maybe we could get him to donate to the cause.
Please donate via this link in the interim: https://wpc2022.org/page/yopdfund


My WPC Video for the last WPC. Handstand for Parkinson’s
Christine Jeyachandran, Ambassador of the World Parkinson 2022

The initial response from facebook.

Not knowing what I was getting into in a good way!

I started the “Parkinson’s secrets to living successfully” video project kind of on a whim. I put it out there as an idea on twitter to see what responses I’d get. It wasn’t long before I got a few interested people responding and sending me their videos. The responses confirmed my hutch that exercise is beneficial and the message worth sharing with the Parkinson’s community.  

Secondly I felt the mix of people would really communicate and connect with more people. 

  • A variety of ages and ages of onset of PD from 30s to 60s
  • A variety of shapes and sizes 
  • A variety of sports and exercise styles and intensity
  • A variety of English speaking countries – USA, Canadian, Wales, Scotland, England, New Zealand and Australia. 
  • A variety of experiences, and
  • all united in the benefits of exercise in treating Parkinson’s disease!

The third realization was that this project was actually going to take a lot of work. I spent a lot of time editing the videos and asking people to send more information or more photos and move video footage. It has all been worth it and thankfully the whole team has been very obliging and positive through the whole process.

The fourth realisation was that we wanted to create a directory of PD organisations that people who had been inspired could contact. Each of the team provided me with details of the Parkinson’s associations and organisations that had helped them and in their context/experience.

And the fifth realisation was that each of the team was willing to share the video with their contacts and organisations related to Parkinson’s. It is thanks to them that the video I has had 1200 views in just over 3 weeks! Video 2 has had over 400 too.

As I watched their stories I got to know them, their hard work became household conversation at our dinner table, their trials and successes and interesting facts. When the kids came into the office they said “that is Tanya” or “that is …”. The funniest comment was my son – he said “Is that my grandma?”. He is nine so not the least bit confused but these folk kinda feel like friends and family. 

I loved the inspiring individuality each brought to the project and I wanted to include all their stories but I couldn’t… I can’t wait to meet them at the World Parkinson’s Congress in Barcelona in JUNE 2022!

My favourite details and quotes(from menory) about the team: 

John
Blogger, Runner and very involved with TEAM Fox.

“Find what you enjoy…I do it for the medals!”
Miriam 
What a long list of sports she plays that I couldn’t include! Impressive! She is a World Parkinson Congress Ambassador

“Exercise is a great antidepressant”.
Kitty  
Comedian, Mother to 4 kids including twins and certainly full of personality. 

“I hate exercising!”
Tanya 
She is a weight lifter, need I say more? She runs a podcast Parkinson’s Road and is now becoming a fitness instructor. I loved her honesty!

“I’d cry on my way to the gym”
Jon 
He has visited every Rock Steady boxing in the USA, he surfs, does hard obstacle races and he is an ambassador the World Parkinson’s Congress

”Some used walkers and they don’t need them after taking up boxing”
Emma
Ninja warrior, She does karate and so much more. This lady can do cartwheels and handstands better than me and without training! She has 3 kids and was nice and honest too.

“I need it (exercise) in my day – If I don’t I get grumpy”
Eirwen 
She is already an avid campaigner in the PD Community and shared our video widely. I loved her input and feedback!

“I can play with the grandkids in the floor”
Jonny
Doctor, artist, animator and finalist for WPC video competition. Check out his socer balls skills. Impressive! 

”Set yourself a goal, if you fail just keep trying”
Alison
Boxing cycling, you name it! Amazingly strong!

“It doesn’t matter what you do… just start doing something”
Robyn

Google analytics tell me that New Zealand is our highest video viewer, thanks to Robyn and Emma and Kitty, despite it’s small size.

“It fixed my frozen shoulders”
Euan
He sent me amazing footage of him doing amazing things – I wished I could have used it all!

“It is theraputic hitting things” (boxing bags not people I assume). 
A.C.
He is an outdoor kinda person, hiking, canoeing you name it. He is also a World Parkinson’s Congress (WPC) Ambassador and is our brave team leader of the ambassadors.

“See you in Barcelona!”

And finally me: Christine – My claim to fame in the Parkinson’s world is my video “Handstand for Parkinson’s, also a finalist at the WPC 2019 and I too am a WPC Ambassador. My focus is encouraging everyone to come to the Parkinson’s World Congress 2022. I am so pumped to meet my team and you can meet them too (of course I am assuming they are all coming!)
 I’ll quote AC says“See in Barcelona!”  

So here is to the team and a sequel video in Barcelona at the World Parkinson’s Congress 2022. 

Ambassador for the World Parkinson’s Congress 2022 – Embajadora de Congreso Mundial de Parkinson.

I am honoured to be chosen as an Ambassador for the World Parkinson’s Congress in June 2022 in Barcelona.

What is a WPC Ambassador you ask?

They are people who have Parkinson’s who are passionate about living well with Parkinson’s and help others do the same. They have attended a congress, I did last year in June in Japan, and they are so excited about the next one and would have booked their tickets already if they could.

“Ambassadors will work as part of our outreach team as we plan for the WPC 2022 in Barcelona, Spain from June 7 – 10, 2022. Whether giving talks at local support groups, writing articles in papers or on blogs, making themselves available to speak about the WPC to communities wanting to learn more about why to attend a World Parkinson Congress, they are invaluable members of the WPC team and we are thrilled to have them on board” WPC website.

It is very exciting and I am looking forward to working with the team of 15 others. I am the only ambassador south of Mexico so I have a lot of ground to cover. The joy of this conference is that it will be in Spanish too so that means that it is important to get the South Americans along while it is in their language.

ESPAÑOL

Me siento honrada de ser elegida embajadora del Congreso Mundial de Parkinson de junio del 2022 en Barcelona.

¿Qué es un/a embajador/a de Congreso Mundial de Parkinson (WPC)?

Son personas con Parkinson apasionadas por vivir bien con Parkinson y ayudar a otros a hacer lo mismo. Han asistido a un congreso, lo hice el año pasado en junio en Japón, y están muy entusiasmados con el próximo y ya habían reservado sus vuelos si pudieran.

“Los embajadores trabajarán como parte de nuestro equipo de promotores y planeamos el WPC 2022 en Barcelona, ​​España, del 7 al 10 de junio de 2022. Ayudaran dando charlas en grupos de apoyo locales, escribiendo artículos en periódicos o blogs, poniéndose a disposición para hablar sobre el WPC a las comunidades que desean aprender más sobre por qué asistir a un Congreso Mundial de Parkinson, son miembros invaluables del equipo de WPC y estamos encantados de tenerlos a bordo” del sitio web de WPC.

Estoy muy emocionada y espero trabajar con el equipo de los 15. Soy el única embajadora al sur de México, así que tengo mucho terreno por recorrer. La alegría de esta conferencia es que también será en español, lo que significa que es importante llevar a los sudamericanos mientras están en su idioma.

 Estoy disponible para hablar en reuniones.  ¿Quien va con conmigo a Barcelona?

https://wpc2022.org/page/2022ParkinAmb?fbclid=IwAR2EFTsD92iMBNv5AofTy23kOsY3PUtPiqpPIoinAX3KOvI5h5zk56RnwLY