My videoRAY OF HOPEhas been short-listed to the World Parkinson Congress VIDEO competition 2023, so I need 4 minutes of your time. I entered the video under the name of the protagonist.RAY FEENEY,not Christine Jeyachandran.
To win the popular vote, Ray and I need your vote.
You can only vote once and for this reason they take your name and email but they don’t put you on a mailing list. It is to discourage dishonesty. Please vote only once and kindly recruit your family and friends to vote too.
A research survey found a significant number of Latin American (Llibre Guerra et al; 2022) people had Parkinson’s Disease symptoms but had NEVER been diagnosed and not had medical or neurological attention.
The study didn’t ask why but we can imagine some don’t know what Parkinson’s is and others or those same people hide because of stigma and discrimination. They become isolated which worsens their disability and increases immobility.
Parkinson’s disease has no CURE.
Raising awareness about Parkinson’s is crucial to prevent late diagnosis and start early physiotherapy/exercise.
We must explain that PD is not a curse, your fault or something to be ashamed of.
We are taking action to prevent discrimination and isolation and encourage holistic treatment including exercise which can help symptoms considerably.
We need help!
I have a small project I’d like to find funding for that aims to empower people with Parkinson’s (PWP) to thrive:
– to be understood,
– to stop isolation,
– and to get treatment!
Over the last few years advocates have emerged who are willing to share their stories about living with Parkinson’s in Peru. The daily struggles, the small triumphs and the ongoing battle inspire us to continue. My story has inspired people to exercise to improve their Parkinson’s symptoms and Dorys’ story about the family’s sacrifice has had immense international feedback.
I just published Ray’s story , and it is turning heads and breaking stigma. In 3 weeks it has had 1000 views and lovely comments. All this without marketing, imagine what we could do if we had a marketing budget.
Stories connect us. Stories about family. The love seeps into our hearts: strained voices, biting of lips, and love in a look. We have these treasures(interviews) in our hands as I filmed them with a professional in 2021 but they need to be edited and marketed for maximum exposure.
I can’t take this on. I’d like to see it created into a documentary for a film festival. It will give an editor a wonderful creative opportunity. They’re in Spanish but modern technology means this isn’t a barrier. I don’t know how it is going to get made but I have faith it will be made and will be a powerful approach to breaking down stigma but not in an educational boring way…
Watch the first story which happens to be in English and catch a bit of the essence of this project.
I have a dream….but I have had many dreams and I know I often get above and beyond what I expect. It is happening in my life right now …but that’s another story.
I dream not for myself but for those who message me in pain in the middle of the night, Sara has no neurologist, no exercise coach, she can’t sleep because of the pain.
For Sara and many more… For Club Dopamine! May this project get the funding or passionate philanthropist it needs.
Alianza Iberoamericana de Parkinson is an exciting initiative that needs support! I’m looking to generate revenue to get this life-impacting initiative off the ground. My project has been short-listed in RISE21 a competition for social enterprises that help reach the UN development goals.
Without timely treatment, Parkinson’s Disease disables many. The Alliance of Parkinson’s aims to increase the quantity, quality and accessibility of resources and training available to health professionals and patients and their families, to improve services and the quality of lives of people with Parkinson’s throughout the Spanish speaking world. See this video for more information. Please contact me by comments if you’d like to know more or can help fund or find funding for this Project:
Special thanks to Ludovic Kohn for the drone footage – check out his channel here for other amazing footage. Amazing! More of his videos on his youtube channel:
Well I had big plans for this fundraiser: I was going to climb a mountain but COVID19 means that after 6 months we’re still on lockdown in Peru. We are only supposed to go out for shopping. So no mountain climbing. So plan B….. but first what am I fundrasing for.
Going to World Parkisnon Congress last year CHANGED MY LIFE!
I have made a short video about it on facebook: https://www.facebook.com/591502886/videos/10157825732897887/?extid=Zl9ANwhhjbO7NBGQ
It empowered me to reach out to help the Parkinson’s community in Peru. I’ve started a Parkinson’s association in my city and I’m educating my community about Parkinson’s, drawing on what I learned the World Parkinson’s Congress. I’d like to see others with Parkisnon’s to also be empowered to help their community here in South America and beyond. I’d probably not be doing what I am doing without the inspiring experience of being a part of the World Parkinson’s Congress.
As you can imagine getting to go to such an international event is expensive, so we are raising funds travel grants to subsidize those in need. The congress is in June 2022 and this time it is unique because it will be in Barcelona in Spain. This is super exciting for Latino’s because it means that it will be translated or presented in Spanish as well as English. This means it is the perfect opportunity to get Peruvians and other Spanish speakers along and empowered to come back and lead their communities.
My aim is to raise $2,000 before my birthday on the 28th August
Thank-you in advance for your generosity. Every little bit counts.
No mountain climbing so what am I doing? What is plan B?
A 10-day physical challenge. I will be exercising everyday sharing a video daily via facebook. I’m a little behind in posting as I had a problem I’m trying to sort out with facebook. My next blog will explain the glitch but I’ll post the first video today.
