FUNDRAISER

Serendipitous meeting

Esta historia esta en español en https://activateparkinson.com/

I was on vacation, relaxing when I met a friendly guy in the same hotel, let’s call him Kevin. He is traveling alone, in his 50’s and my 6th sense told me there was a reason why I should chat with him. But he worked in real estate, no connection there!

But when I told him about my PD association he was full of advice as he had worked in pharmaceuticals previously. He said I should get a social media plan for my organisation. Of course I know that social media is important to get the message out so I nodded politely when he kept pushing this point. 

But the next day he went from a different angle, the more members you have the more you can influence. I have about 100 members and maybe contact with 200 nationwide.. not enough to get this on the national agenda, not even enough for the pharmaceutical companies to take me seriously he says. He said if you can get 5000 people then you have power. 

The penny dropped.

So we need to use paid advertising in social media to get it beyond PD circles. It turns out Kevin had a deceased parent with Parkinson’s and it was clear he’d never heard of such support groups. Point made. 

Activate (my NGO) needs to have a presence that cannot be ignored, so that Parkinson’s treatment and education are actually on the agenda. And so that pharmaceutical companies will come to the party with conference funding, educational resources and doctors etc. Let’s be honest – we’ll always need them, but they need us too and if we group together, just maybe we can influence them for the better.

I asked Kevin to help me draft a letter to send to the pharmaceutical companies which he kindly did but now I’ve got to step back and set up my systems to meet the swell of responses that will come in from my media campaign (create that too) and automated response forms and information sheets etc. Yes, this could take months but April is Parkinson’s awareness month so that could give me a good target. 

It is funny how even on vacation the coincidental meetings with people can influence work. 

Fundraising Target reached! THANK-YOU

Thank-you for your donations for the World Parkinson Congress travel grants fundraiser: WPC for YOPD.

We have over $2500 in donations with a few donations sent directly to us, so hence the estimation as we have yet to send through the latter and with exchanges rates we will confirm later.

The grants are international but in the thank-you video attached we specifically mention helping Peruvians as they will be a priority for the funds I raised.

The 10 day challenge was fun and helped me keep exercising even though we were packing house and moving house.

Day 1: Ab workout

Day 2: Skipping and ribbon Dancing

Day 3: Gymnastics

Day 4: Bars at the Park

Day 5: Head standing and stretching

Day 6: Gymnastics (kip on floor video)

Day 7: Yoga and stretching

Day 8: Moving house – Packing and lifting boxes and suitcases. It was certainly draining even though not traditional exercise.

Day 9: Walking – Walked to the city and back plus suitcase walking in the afternoon.

Day 10: Cycling (indoors and out).

Thank-you again everyone for your support. Blessings

This is a short thank-you from the kids and I.

https://photos.app.goo.gl/SQn71WdMx1EAuowp8

Facebook has blocked me from using their fundraiser

I am having a fundraising for my birthday (28th of August) which is usally done through facebook fundraising but they won’t allow me to use their system because I live in Peru.

I wrote to Mark Zuckerberg an email similar to this:

I signed up in January to raise funds WPC for YOPD. The money goes directly to the World Parkisnon Congress (not to me) though it must be set up from my personal facebook account.

IT SEEMS STRANGE that I am not allowed to raise funds with facebook fundraising for my favourite charity? I went to the WPC facebook page and I can’t even donate? This fundraiser is for my birthday on August 28th. I’ll be 44.

If it was money just for a personal cause I’d understand but this fundraiser is part of a legitimate charity and you can find my profile has been on the website since January. https://wpc2022.org/page/wpc4yopd

I don’t get any money from the fundraising. I just want to help others get along as the World Parkinson’s Congress changed my life for the better.

I made a video about my story of combating parkinson’s by using gymnastics – it was one of the 12 finalists for the video competition. I have kept going ever since and now reach out to my community to help others by running classes and setting up an association.

I am already going to the WPC so this is to raise funds for others – especially my friends who can’t afford to go but I know they would benefit a lot. 

I hope Mark can resolve this.

Maybe we could get him to donate to the cause.
Please donate via this link in the interim: https://wpc2022.org/page/yopdfund


My WPC Video for the last WPC. Handstand for Parkinson’s
Christine Jeyachandran, Ambassador of the World Parkinson 2022

The initial response from facebook.