In Parkinson’s Life magazine today

I shared with the magazine a few articles. They re-edited into a shorter version/ mix if the two articles.

The article online is in the link below. It is nice to be invited to participate regularly.

If you want to see the full article re carols by candlelight keep reading below.

https://parkinsonslife.eu/holiday-greetings-from-the-parkinsons-disease-community/

Christine Jeyachandran’s profile:

Peer-Led Advocacy & Lived Experience

I have lived with Parkinson’s disease for over a decade, using my personal journey to lead advocacy, influence research priorities, and connect global voices—especially in Spanish-speaking communities. I have delivered over 30 talks, facilitated support groups, and developed award-winning short films to raise awareness and improve patient experiences.

Public Speaking Highlights

  • NeuRA Open Day, Patient Voice (Sept 2025)
  • 360 Faith – Speaker “Mountains and Valleys” (Nov 2025)
  • NSW Health talks: Falls Campion, Stroke/Parkinson’s Education and Health Literacy (staff and consumers)
  • TEDxCanberra – Shortlisted, Live Audition (reserve list, July 2024)
  • TEDxSydney – Shortlisted, Live Audition (July 2023)
  • World Parkinson’s Congress (2023)
    • Talk: How to Make the Most of the Congress (Day 0)
    • Lead Workshop: The Unmet Needs of People with Parkinson’s in Latin America (Day 2)
    • Film Q&A: Would You Sell Your House to Save Your Mother? (Day 3)
  • PMD Alliance ALL IN Conference – Workshop Speaker (Oct 2022)
  • Activate Parkinson’s Arequipa Conference (Nov 2022)
  • Reachout Conference – Workshop Panellist and Mainstage Interview (Sept 2022)
  • EUSU Event Speaker (Aug 2022)
  • Pitch Finalist – UNSW Founders NEW WAVE (June 2022)
  • Insight into Parkinson’s Online Conference (April 2020)

Webinars & Panels

  • Panellist – Alianza Iberoamericana (Dec 2023)
  • Represented WPC at Public Forum: Parkinson’s and Related Research (Feb 2023)
  • Panellist – Diva’s Luncheon (Mar 2022)
  • Events – Muhammad Ali Parkinson Center & Spanish Federación de Parkinson (Nov 2021)
  • Eastern Suburbs YOPD Support Group Speaker (Nov 2022)
  • Fight Parkinson’s Webinar for WPC (Aug 2022)
  • Davis Phinney Foundation – Hispanic WPC Promotion Video (Jan 2023)
  • Introduction to LSVT Webinar (Spanish, Nov 2020)
  • Panellist – Sustain Our Abilities Webinar (Apr 2021)
  • Panellist – Paso a Paso (Muhammad Ali Parkinson Center, 2020–2021)

Television

  • Channel 9 News – Shake It Up Australia (May 2023)
  • Channel 10 News – Interview (Mar 2023)
  • TV Perú – Sin Barreras (Apr 2021)

Podcasts

Media Mentions

  • Consumers NSW (Feb 2025)
  • Parkinson’s Europe: “Off Periods” (Jan 2024) and “Fluctuations” (Dec 2023)
  • The Australian – “Parkinson’s Test to Give Patients Early Warning” (Apr 2023)
  • 7News.com.au – “Mum’s Warning Signs…” (2023)
  • Mindfood.com – “How You Can Help Find a Cure”
  • Survivormet.com – “Early Signs of Parkinson’s”
  • News.com.au – “Mum-of-Three’s Devastating Diagnosis”
  • Honey 9 News – “Sydney Mum’s Hidden Symptoms”
  • That’s Life Magazine – Aug/Sep 2023 (Shake It Up Australia feature)
  • Parkinson’s News Today – “Peruvian Family Sell Their Home to Afford Mother’s DBS” (Apr 2021)
  • Parkinson’s Life Magazine – multiple articles (2020–2022)
  • Diario Correo & Encuentro Perú Newspapers (2019–2020)
  • European Parkinson’s Disease Association – YOPD Feature (Feb 2018)

Volunteer Roles

  • World Parkinson’s Congress Alumni Ambassador (2020–2023)
  • Advocate, Shake It Up Australia (2023–ongoing)
  • Ambassador, PMD Alliance (2022–ongoing)
  • Global Parkinson’s Guide Committee Member (PMD Alliance, 2022–2023)

Connect with Me

Put it out there!

I want to do a TED talk someday so annoucing it is one way to make it happen.

 

A few years back I wrote a post about TED talks but I shy-ed away from saying that one day I’d like to do one. So now I am saying it out loud. You won’t get get there without support from my community. I have just been nominated (online) by someone who heard my new wave talk. I know it will take time, more nominations and I need a lot more training to prepare.

The first step…well forget that – an important step is practicing and with 8 talks/ workshops, from July to November this year, I am certainly getting onto that. I’d reading another insightful book on Public speaking but I am now looking for RECOMMNEDATIONS FOR A SCHOLARHIP recommendations to do a course.

COULD YOU?

Anyone willing and able to recommend me for a TED talk and or a public speaking training scholarship feel free to write a letter and send it to me or do it on LinkedIn through recommendations. You might like to explain ‘Why would Christine’s STORY be a great TED /TEDx talk and the impact it could have or has had already. TED is about presenting Ideas worth sharing – and the story would be one CORE element of the talk. The ‘idea worth sharing’ is in development but happy to chat one on one with you about that.

It can be short.

My motivation is to create awareness about young onset Parkinson’s and especially the benefits of exercise. Thank-you in advance.

FROM TEDx Website Sydney

COVID for Christine

“I have cancelled our friends coming for dinner” I said. “No mummy! she implored me to “UNCANCEL” as only a 13 year old can. But within a few hours we were both snoozing in our beds, me with belly pains and body aches and she with the tiredness of a 2 year old. That is not normal for my Annabelle. 

It was the right choice as it turned out. It was COVID. 

My Monday Annabelle and I tested positive to COVID and over the next 10 days I had flu symptoms, slight fever, headaches, both intense and normal, tiredness, sleeplessness and other days of excessive sleep. The other two kids had brief symptoms but we never got them tested and the kids were back to normal within a day or two. 

By my 5th day, David had joined me in the covid sleepiness. 

It is day 11 and though I’m not 100% yet I feel like it is time to seize the day and pray this is the turning point. David seems to be more awake today too and though blowing his nose loudly – he seems on the mend too. 

We’ve had friends delivering food – we still have left overs and so many messages of love and support. We’ve been so blessed to experience a light version of COVID – well that is my guess – no hospitalisation, no oxygen needed. 

Please pray I recover quickly so I can get back to my exercise and vibrant self. I know we need to be patient.