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#wpc2019

World Parkinson’s Congress 2019 Kyoto JAPAN

The World Parkinson’s Congress in Japan was amazing and life changing. Researcher from around the world joined with patients and carers to hear and share about the latest scientific developments and support each other in this journey called Parkinson’s disease.

A reception for Australian’s got me started on networking. There were hundreds of Aussies and over 60 countries represented. I was the only one from Peru.

I heard talks about advocacy, diet, the best exercise, depression/ apathy and anxiety and coping with early onset Parkinson’s with family/work. Some scientific talks that went over my head and others I’m reviewing at home to remember. I did yoga, a dance class and tango which was so empowering.

I met people from all around the world and I especially tried to connect with Latinos and Spanish people and encouraged people to come visit us in Peru and maybe volunteer there.
I told everyone about how tough it is for sufferers in PERU but was so excited to hear next time it will be in Barcelona so that means Peruvians can attend as the conference will be translated into Spanish as well.
My video did not win – but thanks again to everyone who voted nonetheless. The winning video was professional, one of four entries by the same person and about a legendary campaigner/PWP in the Parkinson’s world who had passed away suddenly. A worthy winner indeed.
It was amazing to see how different the symptoms were around us and that there must have been over 200 people under 55 with Parkinson’s at the conference. Over 2000 people attended from 60 countries.
I loved it so much that I can’t wait for World Parkinson’s Congress in 2022. #WPC2022

Knowing Spanish, I hope I might help in some way with organisation as it is run by a small NGO and as you can imagine it is a mammoth undertaking and they need volunteers to help run it. Maybe you could come and volunteer too.  

Projects and persistence in gymnastics

To go along with the video I have renamed the blog “Handstand for Parkinson’s” and the website is www.handstandforparkinsons.com. I hope this won’t cause too much confusion.

The other news is that I am preparing a Poster “Living with Parkinson’s in Peru”. So I am super busy trying to interview people with the disease and write up their stories and creating charts. I have never done something like this and with the time limit so close (June). I am a bit overwhelmed and have ideas that I am struggling to put into action.

Thanks everyone for your votes and support with the video “Handstanding for Parkinson’s Disease”. I have been so blessed by comments and with votes. The winner isn’t announced until June, but voting has finished.

We’re preparing for our 3 month visit to Australia late May to August which is exciting too.

The fun news is that I am working on a follow-up video called “Before and After” about how my coordination, movement balance and strength  improved by doing gymnastics to combat Parkinson’s. It is half done so watch this space. I am relatively new to video editing so it is taking me time to learn but I’m advancing little by little.

Also I am back at the gym training pretty hard but like pride before the fall my handstand has gone backwards. Firstly my coach prefers that I don’t use a wall for support and secondly I am still frightened and lack consistency in my style. I need to keep practicing! Everyone has these valleys or plateaus but I am working hard. My next video will include some new tricks I am working on… of course I’m not looking like a pro but I’m moving forward nonetheless. April marks the first anniversary of my time in the gym.